Dear Family and Friends,
For ten months, we fought for our daughter’s life. This time was very difficult for us but because we had hope and your support, we did not give up. Up to last day of Laura’s life, we believed that God would let her stay with us. We were wrong.
It was a big tragedy for Laura and for us to see how her sickness took away her precious life. With our very own eyes, we saw this tragedy happening and at same time we were not able to help her. These thoughts haunt us every day.
We are asking ourselves, “was there anything else that we could have done to save our Laura’s life?”
We still believe that Laura would be alive today if she would have received ANP therapy from Dr. Burzynski Clinic. In January 2014, her condition was good because her sickness did not develop yet. In the same month, our doctor made his first petition to Heath Canada for approval ANP therapy specifically for Laura. Like him, we believe that would have been the best time to start the treatment and cure her. Yet, the Special Access Program department at Health Canada, denied our doctor’s repeated appeals and continued to deny our daughter access to ANP therapy. They wrote that this therapy is not approved anywhere in the world. It was true that at that time it was not approved by any government, however it continued to be released on Special Access in Australia and in 2012 it was approved by the US FDA for use in clinical trial. The results of this study were good for some patients because they are using ANP therapy (even up to today). When Laura was diagnosed in October 2013 at Sick Kids Hospital, we were told that there is no cure for her, 0% chance. Meanwhile, in the USA and Australia, ANP therapy increased survival chance from 0% up to 25 %. Yet, even when we approached Hon. Rona Ambrose, Federal Minister of Health, the Canadian government continued to deny our daughter’s doctor access to this drug to potentially save her life.
In July this year, Laura’s condition became much worse than it was in January. In the same month, we learned that the US FDA had approved another Clinical Trial for ANP therapy, promising news for brain tumour patients. We were not able to go to Houston for treatment, not because we were not ready, but because it was too late for our Laura—her disease had progressed too far. The news of another FDA clinical trial approval confirmed to the world that there may be potential ANP therapy, especially when there is nothing else available in conventional medicine.
WE HAVE ASKED HEALTH CANADA ONE MORE TIME: WHY DID THEY REFUSE THIS PROMISING TREATMENT FOR OUR DAUGHTER? AT THAT TIME, LAURA’S CONDITION WOULD HAVE MADE HER A CANDIDATE FOR A HIGH CHANCE FOR A CURE OR ATLEAST EXTEND HER LIFE. SO, WHY?
Everybody knows how Health Canada is helping the world by producing experimental vaccines against Ebola sickness. We all hope that this vaccine will be successful and will save many lives as well. We had similar hope for our Laura with experimental ANP therapy— but Health Canada did not give her this chance. WHY ???
We do not understand Health Canada’s actions. Why, in one case, they are denying last chance for experimental therapy for Laura, one of our own in Canada, and at the same time, they are doing an experimental trial with vaccination to save others oceans apart?
Is Laura’s and other children’s lives less important to the Canadian government than those people in need of a vaccine? We will ask Health Canada to answer that question also.
Thank you for continuing to keep Laura in your heart.